Tag Archives: support

Radiation update: week one

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Well tomorrow will complete my first of 3 weeks of Whole Brain Radiation.  I lost 4 pounds from last week which I am glad for but hopefully this isn’t a sign of deterioration.  That’s 25 pounds since I entered the hospital on 1/12 with my staph infection.  My vitals are good and other than my growing fatigue,some temple and jaw pain, and a dull headache, I am so far so good.  The Dr. saw me today and doesn’t expect me to have major side effects which relieves my stress.

I am surrounded by a strong support system which really has helped me so much.  It is funny though how the ones the most distant from me whether by distance or just by knowing me, are sometimes the strongest supporters.

Faith has always been a very private matter to me.  I believe it is a personal choice who to believe in or not believe in.  Those choices are a human right and should be respected and left alone.  That said, in my 40’s I began a spiritual journey in search of finding something that would give my life joy and a deeper relationship with my God. I finally feel at home and at peace with my destination, and it strengthens me and gives me peace as I deal with these oncoming issues.  I never would have found the inner strength to deal with cancer and my sister’s murder in the past 5 1/2 years, were it not for my faith. Sometimes it is hard to see why God challenges us in numerous ways.  But as I reflect back, I can see a glimpse of why things happened the way they did and how they have made myself and my family closer, and better people.

I hope you all find joy and peace in your days and remember that there is always something to be thankful for and to smile about! XO

 

 

New Hurtles to Jump Through

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I want to apologize to my readers and followers for not posting in so long.  I have been dealing with more cancer related health problems, and my mind has been focused on that.  The tumor in my collarbone and neck is getting larger each week and is painful.  It limits movement of my head and shoulder, and sleeping on my right side is a no-no.  I met with my new Oncologist and liked her very much.  She is friends with my old Oncologist from Cancer Treatment Centers of America and they trained together which was exciting to hear.

Dr. Gupta wants me to have a biopsy done on the 16th to see if the tumor markers are still the same.  Is this new growth still HER2+ or is it now negative?  Has the estrogen and progesterone changed to positive or am I looking at triple negative BC?  All of this information will determine future treatment, choices in medicines and availability in clinical trials.

Meanwhile, I had another MRI of my brain which showed between 5-10 tiny lesions throughout my brain.  Because of the high number, I cannot have the cyber knife radiation as I did last year with the two small lesions on my cerebellum and frontal lobe.  On Monday, I began Whole Brain Radiation and will have 15 treatments in total. The whole procedure takes about 4 minutes which cracks me up.  I have been on the steroids since Saturday to reduce the risk of brain swelling.  So far the flushing has not been too bad, and the headaches are gone.  I do have more energy which hopefully balance with the fatigue I am going to feel from the  radiation. Some other side effects from the WBT (whole brain therapy) will be hair loss, either a lot of thinning or total loss (third time for me!), dizziness, balance issues, nausea, vomiting, hearing and vision changes, and scalp irritation/burning.  I will be sharing what I am going through here on this page daily.

Hopefully, this WBT will work, and after my biopsy another PET Scan of my body will show it is nowhere else in my body except the collarbone. If the brain tumors don’t shrink or go away, I could be looking at seizures and strokes as well as a 6 month life expectancy, give or take a month.  I am not focusing on that.  I am remaining hopeful and positive this will work and they can continue to keep the cancer under control for many years.

I have prepared my family and myself for what outcomes we could be dealing with, but my support system is strong. and I am blessed to have many wonderful family members and friends praying for me and fighting with me.

Radiation is at noon each day M-F, and so far so good.  I won’t feel any side effects until after a week so hopefully they are minimal.  More tomorrow!