I want to apologize to my readers and followers for not posting in so long. I have been dealing with more cancer related health problems, and my mind has been focused on that. The tumor in my collarbone and neck is getting larger each week and is painful. It limits movement of my head and shoulder, and sleeping on my right side is a no-no. I met with my new Oncologist and liked her very much. She is friends with my old Oncologist from Cancer Treatment Centers of America and they trained together which was exciting to hear.
Dr. Gupta wants me to have a biopsy done on the 16th to see if the tumor markers are still the same. Is this new growth still HER2+ or is it now negative? Has the estrogen and progesterone changed to positive or am I looking at triple negative BC? All of this information will determine future treatment, choices in medicines and availability in clinical trials.
Meanwhile, I had another MRI of my brain which showed between 5-10 tiny lesions throughout my brain. Because of the high number, I cannot have the cyber knife radiation as I did last year with the two small lesions on my cerebellum and frontal lobe. On Monday, I began Whole Brain Radiation and will have 15 treatments in total. The whole procedure takes about 4 minutes which cracks me up. I have been on the steroids since Saturday to reduce the risk of brain swelling. So far the flushing has not been too bad, and the headaches are gone. I do have more energy which hopefully balance with the fatigue I am going to feel from the radiation. Some other side effects from the WBT (whole brain therapy) will be hair loss, either a lot of thinning or total loss (third time for me!), dizziness, balance issues, nausea, vomiting, hearing and vision changes, and scalp irritation/burning. I will be sharing what I am going through here on this page daily.
Hopefully, this WBT will work, and after my biopsy another PET Scan of my body will show it is nowhere else in my body except the collarbone. If the brain tumors don’t shrink or go away, I could be looking at seizures and strokes as well as a 6 month life expectancy, give or take a month. I am not focusing on that. I am remaining hopeful and positive this will work and they can continue to keep the cancer under control for many years.
I have prepared my family and myself for what outcomes we could be dealing with, but my support system is strong. and I am blessed to have many wonderful family members and friends praying for me and fighting with me.
Radiation is at noon each day M-F, and so far so good. I won’t feel any side effects until after a week so hopefully they are minimal. More tomorrow!